Well, it has been a little over a year since my last blog post. We have had another baby! Kat is a simply awesome baby, and a very welcome addition to the clan. She is about 3 months old now, and just a chubby little princess. Getting her our of the hospital after she was born was....hard. I might blog about that ordeal at a different date.
This week Taz has a VFSS to see if he is still aspirating fluids. If he passes the test this week, he can drink liquids that aren't slime. I can't communicate just how much I want him to pass this VFSS. I try not to think about it because I don't want to get my hopes up. His RAD has been doing really well lately, and he has been pretty healthy respiratory-wise for the last 6 months.
Taz had a focal seizure about 2 months ago. He was eating some veggies, and suddenly he started staring at the ceiling, unresponsive. He was eating some broccoli and I think he had the seizure while he was swallowing, and started choking. He started to turn blue and appeared to not be breathing. I did the various methods to try and help him expel whatever he was choking on. He kind of coughed, and appeared to be very tired, but OK. We called 911, and they believed it was just a choking episode and told us he was fine. The mom-stinct in me kicked in, and I decided that it was likely more than just choking and had him checked out. The ER thought it was more than choking, and referred us to neurology. The neurologist had us do a sleep deprived EEG last month, the results came back "normal" or within the range of normal. The next step is a MRI under general anesthesia I think. Although, if his swallow study is normal that could possibly change the plan- I really don't know.
